Getting that dreaded call at 1AM

Jessica called me this morning just before 1AM. Nathan was deep trouble. His HR skyrocketed into the 200's again for no reason and during the emergency he had suddenly clotted off his only IV line. They had no access to give him any meds. Jessica said he looked bad, the worst he's ever looked, blue all over. Nathan doesn't have many areas they can put an IV anymore, he has clotted off everywhere you would normally put one. Emergently they put an IV in his bone. The NICU team was then able to place an IV in his scalp as well and gave him some narcotics and sedation meds to knock him out. Then they shocked him. I heard all of this over the phone, him crying, all of the beeps and doctors working, it felt like I was there. Shocking him worked the first time thankfully, it brought his HR back down where it had been all day.

The priority for the day will be to get the IV out of his bone and into a vein. They'll do an ultra-sound of his arms and legs and find a place they can put it. I'm assuming going down to the OR is out until we can figure out what happened and why. The doctors have no idea why he's doing this and it came out of nowhere. The plan had originally been to pull the pacer out yesterday but they delayed it until today for whatever reason. I'm glad they did because I'd like it in there as a backup device in case something like this happens again. It's spring, and on top of that it's the week of Easter. Spring brings renewal, everything heals and comes back to life this time of year. What's going to happen this week? It's not in any of our hands at this point. I'm hoping and praying for Nathan to come back to us.

Aaron